Did you know that....August is SMA Awareness Month!
August 13, 2015
I have the pleasure of knowing a genuinely sweet and amazing Mama, whom I met via Instagram. Her name is Christine and her son, Caleb (4), has SMA (Spinal Muscular Atrophy). He was diagnosed at 17 months old, when he wasn't meeting his milestones. A blood test determined that he has SMA Type 2.
Caleb is wearing his Delight hat and Rare Tee, both from @wee_delights.
SMA is basically ALS but in babies and children. There are 4 types of SMA with Type 1 being the most severe and 4 being the least. SMA is the # 1 genetic killer of infants under the age of 2. SMA causes the muscles to deteriorate due to the lack of connection between the brain and muscles because of missing protein-producing neurons. Since muscles are affected, so is the respiratory system. SMA children have very weak immune and respiratory systems meaning the common cold can be fatal.
August is SMA Awareness Month. Christine, happens to be the owner of @wee_delights (www.weedelights.com), a really rad shop, which is selling a RARE tank/tee and tote, a portion of the proceeds being donated to @gsfoundation, a not for profit organization whose mission is to help spread SMA awareness, as well as help the families affected by this RARE disease.
There is NO CURE but treatments are on the horizon. You can get more info at www.CureSMA.org.